About CADASIL Our Program CADASIL studies at the Memory & Aging Program Other CADASIL research How to support CADASIL research About living with CADASIL CADASIL research areas    

LINKS TO CADASIL RESOURCES ON THE WEB

Since CADASIL is a rare disease and has only recently become well known, information for patients and family members is still quite sparse. To our knowledge there is no book of advice for lay people. Web sites on the internet can be of inconsistent quality, but some of them are helpful for patients and families dealing with the disease. We recommend the following websites:

Groups Involved in CADASIL Research and Patient Advocacy

Memory and Aging Program
This is the website of our program, which is located in Providence, RI.

United Leukodystrophy Foundation
Click "Types of Leukodystrophy" on the left side of the page for information about CADASIL.

CADASIL Foundation (Together We Have Hope Non-Profit Organization)
A patient advocacy group based in the U.S.

CADASIL Trust
A patient advocacy group based in the U.K

CADASIL Information Site
A patient advocacy group based in the U.K

CADASIL France
A patient advocacy group based in France (in French)


Background Information on CADASIL


Genetics Home Reference for CADASIL

U.S. National Library of Medicine website on CADASIL with many useful links

CADASIL on the GeneTests Website
A detailed but technical description of CADASIL


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Memory and Aging Program
Butler Hospital
345 Blackstone Blvd.
Providence, RI 02906


401-455-6403
Fax: 401-455-6405
memorydisorder.org

 

 

Website: Thea Brennan-Krohn
email: theabk@yahoo.com