and when to have genetic testing for CADASIL is an important decision
for family members at risk for the disease. You should discuss your
questions and concerns about genetic testing with a genetics
counselor. To find a genetics counselor in your area, click
It is generally
not advisable for children who are minors to have genetic testing for
CADASIL, particularly if they are not showing symptoms of the disease.
There are a number of practical and psychological reasons why this is
discouraged, the details of which can be discussed with your physician
or a genetics counselor. If your child is an adult, you may wish to
talk with him or her about your diagnosis and about the fact that CADASIL
is inherited. Your child can then discuss this with his or her own treating
physician and make a decision about whether or not to have a detailed
neurological evaluation including MRI and genetic testing.